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Support

In Australia and globally, various organisations and patient groups provide support for people living with cancer, their families and carers.

Support groups

OLink to Brain Tumour Alliance Australiaur partner, Brain Tumour Alliance Australia  (BTAA)  provides general information for brain cancer patients and their carers and maintains a useful list of specific local brain cancer support groups across Australia here.


Link to Peace of Mind Foundation
Another partner, the Peace of Mind Foundation focuses on helping people diagnosed with malignant brain tumours, and providing support, care and financial aid to these individuals and their families.

 


Link to James Crofts Hope FoundationAnother partner, the James Crofts Hope Foundation, runs monthly support groups on the last Tuesday of each month for people with brain tumours, their carers and families. They also provide financial support to those in need. 

 

Telephone support


Cancer Council Australia provides a peer-to-peer telephone support service called Cancer Connect manned by trained volunteers who have had a similar cancer experience. For more information call the Cancer Council Helpline on 13 11 20.

General support

Cancer Council Australia provide general support services at a local level. See http://www.cancer.org.au/ or call the Cancer Council Helpline on 13 11 20. 

Additional information is also available from the BTAA at www.btaa.org.au and from Brain Tumour Australia Information (BTAI) at www.btai.com.au.

Childhood Brain Tumours

Information for families of children with brain cancer can be found in the Childhood Brain Tumour pages.

International Resources

The American Brain Tumor Association (ABTA) provide comprehensive resources that support the needs of brain tumor patients and caregivers and parents of children with brain tumours. They provide a useful document “About Brain Tumors: A Primer for Patients and Caregivers” which can be downloaded for free.

The Musella Foundation helps families deal with a brain tumor diagnosis by creating and distributing educational materials, providing assistance matching patients to clinical trials, and giving emotional and financial support to brain tumour patients.  The Musella Foundation offer a free download for newly diagnosed patients, “Brain Tumor Guide for the Newly Diagnosed”.

Please note, whilst the above sources contain valuable information for patients and carers, they are based on the situation and standard of care in the USA, and as such the availability of treatment and what constitutes standard treatment and patient care processes often differs from those in Australia.