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To join a clinical trial, or other study, you need to speak to your doctor first. Most specialists know about current studies that may be available to you. 

Clinical trials have inclusion (what you must have) and exclusion (what you cannot have) criteria, which will determine if you can be part of a trial. This ensures participants in the trial are similar in factors such as age, type and stage of cancer, general health, and any previous treatments. When all participants meet the same criteria, it is more likely the results of the study are caused by the drug or therapy being tested than other factors, like chance.  

Participating in research is a voluntary decision. It is important people with brain cancer do not feel forced to take part in a clinical trial.  

If a person is eligible for a clinical trial, they need to weigh up the advantages and disadvantages of taking part. Below are some possible advantages and disadvantages of taking part in a clinical trial.  

Advantages 

Disadvantages 

  • Clinical trials offer access to the newest, most up-to-date research treatments before they are available to the general public 
  • Participating in a clinical trial allows people to play an active role in their healthcare and their treatment 
  • Clinical trials may be important for people with rare or difficult to treat conditions, for which there might be limited research into how the condition is best treated or managed 
  • People participating in clinical trials may be monitored more closely compared with those receiving standard treatment 
  • Other people may benefit in the future from the information learned from a clinical trial 
  • The treatment tested in the clinical trial may have unpleasant or more serious side effects 

  • Clinical trials often require more treatment tests, hospital visits or other requirements, such as keeping a symptoms diary or collecting 24-hour urine specimens 

  • The treatment in the clinical trial may not work 

Information about specific clinical trials can be found online. The government-accredited sites listed below detail the clinical trials registered in Australia and internationally.

Australian Cancer Trials is an online register of cancer-specific clinical trials in Australia.

The Australian New Zealand Clinical Trials Registry (ANZCTR) is an online register of clinical trials conducted in Australia and New Zealand. 

Clinicaltrials.gov is the world’s largest clinical trials database. This site is an international register of clinical trials from more than 170 countries. You can filter for trials based on location and disease type.

Some non-government organisations, such as those listed below*, provide information on available clinical trials and opportunities to participate in research.

CenterWatch is a United States-based database with over 55,000 active clinical trials.

HealthMatch matches patients with clinical trials that they may be eligible for. The system continues to look for matches as trials are updated and new trials become available.

Register4 is an Australian database which lists opportunities for adults aged 18 years and older to participate in cancer-specific research studies.

Scientia Clinical Research is a Sydney-based centre for early phase clinical trials.

 

*These links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by Cure Brain Cancer Foundation. Cure Brain Cancer Foundation does not control or guarantee the accuracy, relevance, timeliness or completeness of information contained on a linked website and nor does it accept any liability whatsoever for the use of these websites.

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