Cure Brain Cancer Foundation hosted the annual Brain Tumour Support & Education Forum, sponsored by the Cancer Institute NSW, as part of Brain Cancer Action Week. You can watch videos of the talks and panels and download presentations - see list below.
The Brain Tumour Support and Education Forum was an opportunity for people diagnosed with brain cancer and their carers and families to learn from the experts and ask questions about clinical care, treatment options, current research, clinical trials and support and community services.
Neurosurgeon Dr Brindha Shivalingam from Royal Prince Alfred Hospital was the keynote speaker at the Sydney forum where she gave an overview of current research, clinical care and treatment options, and future research and clinical care directions.
Other talks covered: supportive care and coordination of care, understanding tests and what they mean, support for families and carers and access to research and clinical trials. There were 2 panels, in the morning and the afternoon, the first of which was webcast and viewers from around the country contributed questions live that the panel addressed.
You can view the videos of talks and panels a below and you an also view/download the presentations as standalone documents.
Parallel forums were held in NSW, ACT, VIC, TAS, SA and WA in the same week.
If you attended the event or watched the webcast, we’d be grateful if you could complete our feedback survey here so that we can improve future patient forums.
You can download the full agenda for this event here.
Please find a selection of videos from the forum below.
The actual presentations given are now available as standalone documents. Please find each of the presentations via the links below:
Brain Tumours: An overview on current clinical care and research, Dr Brindha Shivalingam
Parallel Session 1
Supportive Care and coordination of care
The role of the care coordinator and how they can help, Sr. Marina Kastelan
What do all of the tests mean?
Tests related to diagnosis: Pathology and biological markers, Dr. Michael Buckland
Tests related to management, Prof. Paul de Souza
Parallel Session 2
Support for families and carers
Managing behavioural and cognitive changes associated with brain cancer, Diane Whiting
Cancer Council NSW services to support brain cancer patients and their families, Ms Lorna O’Brien
Access to Research and Clinical Trials
Research development and early phase clinical trials, Dr Kerrie McDonald
Brain cancer clinical trials in Australia, Dr Helen Wheeler
Meeting the unmet needs of Brain Tumour Patients, Dr. Danette Langbecker, Keynote