Dialog Box

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20
Mar
2020

A message from our Head of Advocacy

 Annabelle Wilson, Cure Brain Cancer Foundation's Head of Advocacy

To our wonderful community,

I wanted to reach out on behalf of Cure Brain Cancer Foundation to let you know that we are still walking beside you even through these unprecedented times. Brain cancer won’t take a break, so neither will we.

Some of you will have already felt the effects of having to postpone fundraising events, pull out of attending support groups, or are now having medical appointments over the phone. We have had to quickly adapt and make changes too, but we are making the best of working remotely (getting to meet each other’s dogs in video conferences is a highlight!) so we can continue to prioritise our research and advocacy work and continue to see this through, together.

The COVID-19 outbreak is certainly a challenge, but we are used to rising to challenges as a team.

We can’t let our momentum slow down now, there is just too much to do. And we won’t. You have my word.

Please take care of yourselves, and each other. Don’t hesitate to keep in touch with me at annabelle.wilson@curebraincancer.org.au or our wider community on the Cure Brain Cancer Foundation Fundraising And Volunteer Forum on Facebook, if you are a part of it. Check in with each other, reach out to your neighbours, and keep calling your friends and family. 

We are still learning more about COVID-19 every day, but one thing we do know is that many people in our community are either at a higher risk, or in close contact with someone who is.

“Our knowledge about COVID-19 is changing rapidly. If you are receiving cancer treatment that suppresses your immune system and you develop a fever or respiratory symptoms, call your oncologist or a member of your treatment team, as you usually would if you develop a fever while on treatment. Be sure to follow their guidance on actions to take,” - Professor Dorothy Keefe, CEO, Cancer Australia and Medical Oncologist.

We have been told to practice good hygiene (washing your hands often with soap and water for at least 20 seconds, or using alcohol-based hand sanitiser and using a tissue to cover your mouth when you cough or sneeze) and avoiding contact with others.

But, as someone living with brain cancer, there are other things you will need to consider, such as making sure you have enough prescription and over-the-counter medications. Also, try to avoid crowds and people who are sick. If there is a COVID-19 outbreak in your area, stay homeas much as possible to further reduce your risk of being exposed.

If you are caring for someone who has brain cancer, alongside doing all of the above, talk to your GP about getting the flu-shot as quickly as possible.

For more information and updates, you can always contact the Coronavirus Health Information Line 24 hours a day, seven days a week. Call 1800 020 080.

Our commitment to finding a cure for brain cancer will never waver, no matter what is going on out there.

Since 2013 we’ve backed 53 research grants, enabled the investigation of almost 120,000 drugs, and facilitated more than 550 Australian and global research collaborations. This, alongside our advocacy efforts which have been driven by you, have seen continued support from government and flung brain cancer firmly into the spotlight, because together we cannot be ignored. 

We won’t stop funding those organisations, labs and clinical trials that are making huge leaps towards a cure, so our fundraising and engagement efforts will continue, just a little bit differently and a little bit more virtually, so watch this space. 

I want to take this opportunity to say a huge thank you, from the bottom of my heart. Not just for your support and strength through all of this, but also for everything we have been though together up to now.

Brain cancer won’t stop, and neither will we. Here’s to keeping on keeping on. 

Please keep in touch.

 
Annabelle Wilson,
Head of Advocacy,
Cure Brain Cancer Foundation

Annabelle's brain cancer story