In Australia and globally, various organisations and patient groups provide support for people living with cancer, their families and carers.
Our partner, Brain Tumour Alliance Australia (BTAA) provides general information for brain cancer patients and their carers and maintains a useful list of specific local brain cancer support groups across Australia here. BTAA have also offered new resources (May 2019) which can be downloaded in ten different languages which support patients on their brain cancer journey with helpful guides, including a patient pathway, questions you may wish to ask, and an info brochure.
Another partner, the James Crofts Hope Foundation, runs monthly support groups on the last Tuesday of each month for people with brain tumours, their carers and families. They also provide financial support to those in need.
Cancer Council Australia provides a peer-to-peer telephone support service manned by trained volunteers who have had a similar cancer experience.
Cancer Council also runs monthly support groups over the telephone for brain cancer patients and their carers, which can be accessed by calling 1300 755 632:
- For patients - every 1st and 3rd Monday of the month between 1.30pm - 2.30pm (AEST)
- For carers - every 2nd and 4th Wednesday of the month between 1.30pm - 2.30pm (AEST)
For more information call the Cancer Council Helpline on 13 11 20.
Cancer Council Australia provide general support services at a local level. See http://www.cancer.org.au/ or call the Cancer Council Helpline on 13 11 20.
Young adults with brain cancer face very specific issues. Canteen provide support resources for young adults and their families to support them on this journey. Their support services can be browsed here.
Additional information is also available from the BTAA at www.btaa.org.au.
Childhood Brain Tumours
Dr Geoff McCowage is a paediatric neuro-oncologist at Westmead Children's Hospital in Sydney who has created a podcast series to help parents of children with brain cancer. The podcast is free to listen on Soundcloud and is an incredibly useful and friendly resource for families going through a brain cancer journey. Listen here.
Information for families of children with brain cancer can be found on our Childhood Brain Tumour pages.
The American Brain Tumor Association (ABTA) provide comprehensive resources that support the needs of brain tumor patients and caregivers and parents of children with brain tumours. They provide a useful document “About Brain Tumors: A Primer for Patients and Caregivers” which can be downloaded for free.
The Musella Foundation helps families deal with a brain tumor diagnosis by creating and distributing educational materials, providing assistance matching patients to clinical trials, and giving emotional and financial support to brain tumour patients. The Musella Foundation offer a free download for newly diagnosed patients, “Brain Tumor Guide for the Newly Diagnosed”.
Cancer Research UK has a great deal of information about cancer in general that you may find useful, as well as specific information about brain tumours.
Please note, whilst the above sources contain valuable information for patients and carers, they are based on the situation and standard of care in the USA, and as such the availability of treatment and what constitutes standard treatment and patient care processes often differs from those in Australia.